Clarity for a Condition That’s Anything But

Structured support for every step of the Lipedema Journey

Lipedema is complex. Most systems aren’t built for it. Ours are.

The Lipedema Health Navigator is our five-pillar framework, guiding women with structured, evidence-based tools and support through every phase of their journey.

DISCOVER: Decode your symptoms. Get answers sooner.
Best for: Women questioning unexplained changes)

EDUCATE: Professional education and advocacy tools.

Best for: Providers and women preparing for care conversations)

NAVIGATE: Plan insurance, surgery, and next steps without the guesswork.

Best for: Those seeking treatment or facing insurance barriers)

MANAGE:
Coordinate daily care and track progress with structure.
Best for: Active treatment, post-surgery, daily management)

THRIVE: Build resilience, prevent setbacks, and move forward.
Best for: Long-term recovery, living well with Lipedema)

Be Heard. Get Clarity. Start Here.

If you’ve been dismissed, blamed, or told “it’s just weight,” you’re not alone and you don’t have to wait years for answers. The Body You Know is the first nurse-created guide built to help women recognize overlooked patterns, document symptoms, and finally be heard in the exam room. Inside, you’ll find the ILEAD™ assessment, symptom mapping, and clear steps for taking control of your healthcare conversations. This is not just another awareness guide it’s a structured system for women who are ready to get real answers.

Advance Access—By Request Only

We’re selecting 25 women to receive the advance digital edition of The Body You Know before it goes to print. Early readers will shape the next standard in Lipedema care and be recognized as founding contributors in our published acknowledgments.

  • Request early access below.

    If selected, you’ll receive the eBook, direct support from our team, and a brief feedback survey.

    This opportunity is only for women who want to make a real difference for others on this journey.

What Is Lipedema and What Can You Do About It?

Lipedema causes painful, progressive adipose fat buildup in the legs and arms that is difficult to lose despite diet and exercise. Early recognition is critical for better care and outcomes.

Photo credit: Wiedner M, Aghajanzadeh D, Richter DF. Differential diagnoses and treatment of lipedema. Plastic and Aesthetic Research. 2020; 7:10. http//dx.doi.org/10.20517/2347-9264.2019.5. https//creativecommons.org/licenses/by/4.0/.

Examples of Lipedema:

Lipedema presents as symmetrical fat accumulation and swelling in the legs and sometimes arms, with a distinct “cuffing” at the ankles and often sparing the feet. Pain, easy bruising, and nodules under the skin are common.

Recognition is the first action. Find your starting point below.

Find Your Starting Point

  • Discover

    Questioning new or unexplained symptoms? Start here to recognize Lipedema patterns early and take your first step toward clarity.

  • Educate

    Professional education and training for providers. Coming soon. Sign up for updates and early access opportunities.

  • Navigate

    Facing insurance barriers or planning treatment? Use step-by-step support for coverage, referrals, and surgical planning.

  • Manage

    In active treatment or post-surgery? Organize daily care, track progress, and keep your recovery on course with system-driven tools.

  • Thrive

    Ready for long-term success? Build resilience, prevent setbacks, and move forward with confidence, supported at every stage.

Stop second-guessing your symptoms. Start getting the answers you deserve.

Sign up to get the two tools every woman navigating unexplained body changes wishes she’d had years sooner.

You’ll get:

  • Symptom Mapping Worksheet
    Visually document what’s really happening in your body, track, spot patterns, and make your symptoms impossible to ignore.

  • Doctor Conversation Prep Sheet
    Walk into every appointment prepared. Know what to say, what to ask, and how to make your concerns heard.

Get organized. Get clear. Get taken seriously.

Enter your email below to download your free Clarity Organizer—nurse-designed and ready for your next appointment.